reflections related to disability advocacy, family and (needed) cultural change
Saturday, April 05, 2008
Targeted Question: Disability Beliefs
It’s the IEP season and full servings of stress are being dished up with lots of conversations about kids, schools, teams and plans. In the midst of all this one of my friends, whose son is in 9th grade, asked me if my team had asked me “THE QUESTION” at my daughter’s meeting this week.
“THE QUESTION?” I asked.
Apparently every year for the past few years her son’s case manager has asked the same question at the beginning of every IEP meeting:
“Do you want your son to have competitive employment, supported employment or sheltered employment?”
She went on and told me lots of other stuff about her meeting, but this question really stuck with me.
I really hate this question.
Who wants to be part of a team where the coach starts the game by asking, “Should we aim for the bullseye, the target or the wall?”
Wouldn’t work for Wednesday night darts.
Doesn’t work in Wednesday morning IEP meetings either!
I hate the implication—at the beginning of team deliberations—that there are only 3 possible paths for her son. More than that, I hate that the 3 paths offered require her son to fit a system rather than requiring a system to fit her son.
Surely we can do better than this????
(Wheelie Catholic has written an interesting post about the value of consumer driven services. Check it out!)
I am the mother of three, wife of one. I am a Partners in Policymaking graduate and a committed disability advocate. I want to catch up on my scrapbooking, learn more about art-journaling, get my house in order, read all the books I have set aside to read and change the world--not necessarily in that order. The opinions in this blog are my own and not those of any of employers.