reflections related to disability advocacy, family and (needed) cultural change
Wednesday, October 07, 2009
Lots of Legislation: Walk through the Web With Me
Now the web on this tour is not like the lovely web in this picture... naturally not.
Our web is more like the one that I walked through on my porch this morning--all globbed up and folded on itself and stuck to me...
Now doesn't that sound like fun?
Seriously though, there is a lot of legislation and government activity going on right now that affects many aspects of living with disability. We can have an impact for ourselves or for our kids if we take action now.
First up, of course, is healthcare:
Healthcare coverage for people with disabilities is a very tricky and delicate proposal. And it not only affects people's health... it also impacts potential for employment and often even where a person with a disability can live.
Healthcare, is of course, necessary for people with disabilities and it can also be expensive. Therefore employers are often hesitant to hire people whose high health needs will make insurance more expensive for their company...
Employeers often need not worry though... even if they did hire someone with a disability and offer them insurance the likeliehood is that the person with a disability would be turned down for coverage because their disability is "pre-existing condition."
So then what does a person who needs care do? They sign on for Medicaid.
The care can be ok depending on your state, your town, your caregivers and all, but now you have to stay eligible...
To be eligible for Medicare and Medicaid you can't have more than $2000 in assets to your name.
So you can't work. At least not much...
This is why so many people with disabilities want a public option for health insurance--something affordable that they can buy on their own. So they can separate their healthcare from their employer AND make a living...
Action: Call (800)828-0498 and ask to be put through to your Senator's office. Let them know that these issues matter to someone you love.
More about healthcare:
Under the current payment systems for Medicaid and Medicare funding is guaranteed for people who live in nursing homes and other institutions and not guaranteed except under a variance for people to live in their own homes in the community.
Now living in your own home is more desireable, AND it has also been proven to be more cost-effective... but that isn't where the money goes. This 'institutional bias' forces many people who could live and work in the community to live in care systems they neither need or want...
What is being proposed under the Community Choice First Act is that the "money will follow the person" rather than the current system of the money going to organizations to divvy up the way they choose. This will allow folks who need or want more comprehensive care in a small or large facility to have the funds for them spent that way. And for the folks who want to stay home, the money for their care can be spent on community-based services.
I am the mother of three, wife of one. I am a Partners in Policymaking graduate and a committed disability advocate. I want to catch up on my scrapbooking, learn more about art-journaling, get my house in order, read all the books I have set aside to read and change the world--not necessarily in that order. The opinions in this blog are my own and not those of any of employers.