Sunday, May 08, 2011

Mothers' Day

We win.
No one knows it but us.

But we do.

We are the parents of kids with disabilities who get to see the true value of our children. Though it can hurt, we get past what we thought our children would become. Though it’s painful, we get beyond whatever society decides what our children can or can’t do. And, no matter what we used to think, we stand up to build the life our children need, want and deserve.

We go beyond our past ideas, to the gift of the child that is. Our world view explodes... and then expands.

We struggle. We worry. Sometimes we rage. Sometimes we cry.


We are the lucky ones.

We get to know miracles. We know just exactly what it takes to learn. We know just how many muscles must respond to make a person able to walk or talk. We know just how the process of language unfolds and what it really means when it works or when it doesn’t. Reading, writning and arithmetic are more than assumptions for us.

We get to figure out what really matters. We know about justice (and injustice.) We know stuff we never thought we would or could.

We treasure moments.

And, no matter what society sees or understands, we know that love is not about ability or response to intervention or any other standard or value. We know the meaning of and the reasons for ‘fierce.’

We change the world.

Unconditional is us.

It's not easy, but we get to see behind the curtain.

We are challenged. We are stressed. We fight like tigers and sometimes we are frazzeled to the bone.

And we are blessed.

Happy Mothers’ Day to all of us!

1 comment:

Anonymous said...

Checking it all out, sounds pretty atrocious, good to hear from you, hope all is well!