reflections related to disability advocacy, family and (needed) cultural change
Sunday, March 22, 2009
Easter Eggs and Activism
It's funny, but I have noticed many times that when I talk with folks about disability rights issues some people--parents of children who have disabilities-- can't get away from me fast enough. And the other day I was talking to my friend in Texas and she finds the same thing.
People don't actually stick their fingers in their ears and say, "La, la, la, I can't hear you," but sometimes I think they want to.
Some of them feel overwhelmed thinking about legislative issues, others fear being immersed in controversy and work, some say they will work on those issues when their children are older, and others say they just want to think about happier things...
One of my hopes in life is to tap this unrealized source of disability support. I keep e-lists for systems activists and a separate list for people who want me to keep it 'lite' for them and I do. I send less, explain more and ask for less, but it is really difficult.
I want to say to these people that the 'pardon me, I seem to be standing under your foot' advocacy method has never changed anything, for anyone, ever.
I want to tell them that the only way to justice is THROUGH their fear and that the dread is always worse than the job itself.
I want to tell them that taking a stand and facing down controversy is the path to peace.
I want to tell them that they will not be alone, there are lots of folks to stand with...
And most of all I want to tell them that we need them.
We need Easter Egg Hunts AND activism. Scrapbooking get-togethers AND visits to legislators, moms' nights out AND and an eye on the systems that affect us.
If we could engage everyone we could change our culture and create a world that would nurture everyone without overwhelming any of us.
I am the mother of three, wife of one. I am a Partners in Policymaking graduate and a committed disability advocate. I want to catch up on my scrapbooking, learn more about art-journaling, get my house in order, read all the books I have set aside to read and change the world--not necessarily in that order. The opinions in this blog are my own and not those of any of employers.