Sunday, February 07, 2010

This and That

Last week, Jennifer approached me to tell me things that Carly, a girl from her class, was doing after school, then she would take my face in her hands to say "And not me!"

Jenn was clearly feeling left out.

At first I would comment that Carly was just a busy girl... Then I asked if Carly was doing this with her family.... Finally Jenn made me understand that there was an afterschool club that she wanted to belong to.

So we asked and Jenn is now taking part....

Excellent bit of self-advocacy, wouldn't you say?

And now for some interesting links:

This post by Stephen Drake about Writers Logjam talks about an NVLD issue that my son runs into too... As do I sometimes.

Deborah at Pipecleaner Dreams talks about the heroes she has met while parenting her kids with disabilities.

And this letter from Deborah to professionals working with her kids should be read by every young professional.

I am really enjoying seeing the Think Beyond the Label ads around the net.

And in case you think people with disabilities are the only ones working to change the language and the message that the world hears about them, they're not!


Louise said...

Thanks for the subject matter this Sunday morning, Terri. You got me thinking..."what does it look like when my 10 year old son with severe articulation disorder and moderate intellectual learning differences tries to say this to me"? I promise it looks like an inappropriate behavior. What effect is his action having or not having on me that causes him to be even less effective than his disability?
I hear another social story coming on.

Terri said...

A lot of 'behaviors' may well be self-advocacy. Especially if a person has limited ways to communicate. If so, it becomes important to recognize and then support self-advocacy without reinforcing problem behviors. Not easy, but very valuable.

Louise said...

In many ways disability is a marketing problem.
How to market your self, would be a great part of independence training.
How could we integrate Marketing your needs, and your abilities into a community based system.
I am trying to think about this.

Rob said...

Haven't checked in for a while but always enjoy your stuff when I do. BUT...sorry, guess I always have one...the video you posted totally reinforces the accepted image of people with disabilities who can work (according to society) - the otherwise "normal looking" person who happens to sit in a wheelchair. No speech disability, no spastic movements, etc. And yes, I'm only mentioning my characteristics for brevity, but I'm sure we both know there are many more.

I don't want to break your no advertising rule so I won't mention the names, but I'd still like to do a link exchange with one or both of my blogs with you.

Terri said...

Thanks Rob, I see what you mean about the video--hadn't thought about that before. Wonder if they have a plan for building a bridge for the people society understands less easily.... You are right, it does not go far enough on its own.

Links to a blog with content, to my way of thinking, are not advertising--that is connecting resources which I really like. Selling sneakers or particular medical programs through my comments (or writing long half other language, half english posts about mice getting married that include links to sneaker commercials....)these don't work for me!

Rob said...

Great. I think you're one of my whopping two followers on PhillyACCESS, and RobQInk has a disability category. I'd love to exchange links on one or both. Let me know if you are interested. Both are on blogspot addresses and, I think, listed in my profile. Thx.